So Ty fell asleep on the couch watching TV last night at 730p. I wasn't surprised when I heard him up at 3a coughing. I gave him his medicine and luckily he went back to sleep until 530a. He is incredibly calm this morning... a sight to be seen just hanging on the sofa watching Noggin. In general, the last couple of days he seems more focused and engaged.. seeking intentful communication and help, and is busying himself purposefully with less wandering - I wouldn't call it playing yet, lol, but not stimming either.
We took him to a park for a short time, absolutely beautiful day (gotta love TX). And then we went to dinner at a new pizza joint for dinner. He did well there, but after we got home ran a fever again (they have been low grade and I have not treated them, just giving cough medicine). He fell asleep at 8pm watching TV, awoke at 3a (gave more medicine and he went back to sleep) and got up at 7a on Sunday.
Saturday, January 31, 2009
Friday, January 30, 2009
DAY 70
Ty woke up at 2am and his cough took over... 4 long hours of playing in his bed (and me squished next to him trying to get him back to sleep!) - he finally fell back asleep as I heard my alarm go off in the other room at 6a. He woke back up at 8a and his cough was bad so I kept him home from school. He also had a low grade fever again.
He actually had a fairly good day at home though... kept himself busy, no shredding and I still have his straws put away from the other day and he isn't seeking to replace that stim. We also had 2 more BM's independent today - big yay! Vocal stimming continues to be loud and proud!
Going to be an early night with disrupted sleep last night and cough medicine!
He actually had a fairly good day at home though... kept himself busy, no shredding and I still have his straws put away from the other day and he isn't seeking to replace that stim. We also had 2 more BM's independent today - big yay! Vocal stimming continues to be loud and proud!
Going to be an early night with disrupted sleep last night and cough medicine!
Thursday, January 29, 2009
DAY 69
Ty woke up coughing at 1am but settled himself back to sleep (thank goodness!). His chest is rattling and it is a loose, productive upper respiratory congestion. His cheeks were rosey also this morning, but no low grade fever. I have to think it is the pattern of the tea that we have been seeing. He doesn't appear to be sick, happy and on the go this morning. We did get 2, yes 2, BM's in the potty yesterday (one was VERY foul smelling... he flushed before I could see it, but oh my, could still clear a room!)
Teacher reported more vocal stimming at school, but OT called me and evaluation with communication device is looking promising. He is responding better than signing - only catch being he is in a verbal behavior classroom and they may not be completely on board with an augmentitave device being used in there (OT and ST admit that they are glad I "pushed the issue"). Don't you just love the public school system for special needs?????????????
Mellow afternoon, and another independent BM this afternoon - woo hoo, this just thrills me, time and time again! Teacher reported lots of coughing at school, but while notable at home, doesn't sound so bad. Added in Magnesium this afternoon as another "calmer" for vocal stimming.. we'll have to wait and see how that plays out.
Teacher reported more vocal stimming at school, but OT called me and evaluation with communication device is looking promising. He is responding better than signing - only catch being he is in a verbal behavior classroom and they may not be completely on board with an augmentitave device being used in there (OT and ST admit that they are glad I "pushed the issue"). Don't you just love the public school system for special needs?????????????
Mellow afternoon, and another independent BM this afternoon - woo hoo, this just thrills me, time and time again! Teacher reported lots of coughing at school, but while notable at home, doesn't sound so bad. Added in Magnesium this afternoon as another "calmer" for vocal stimming.. we'll have to wait and see how that plays out.
Wednesday, January 28, 2009
DAY 68
SCHOOL'S CLOSED - Groundhog Day! WHAAA!
I took away Ty's favorite stims (am I crazy, lol) and started working with him on identifying high frequency sight words. Whoa, he is terrible working for me.. pitched a huge fit. But to my surprise I got vocal approximations for "A", "I", and "ME" - "me" is new, we knew he could echoic A and I. He also said "no" several times when he was mad - gotta love motivation and language! New thing with the train today is he doesn't want the track set up.. (that was short lived) - so everytime he walks by it, he takes the track apart. I went ahead and put it away and brought out a car toy instead and he is approaching it - slow, slow progress with toy play.
On the biomed front... we are begining to add back some key Yasko supps as I had mentioned earlier in the week. I carefully went through Ty's genetics this morning and will be looking at areas that I feel the tea will not benefit (or areas that looked "stressed" since we took him off of everything). I am going to work up slowly to add back about 20 supplements. I am not going to concentrate on organ support or gut, as I feel the tea is doing a terrific job in these areas. Instead, I am focused on neurotransmitter aspects, and will eventually work toward methylation pathway supports. Hopefully we can find a nice balance and get some testing done to see where things are. In a perfect world I would have sent off a UAA and MAP when he started to tank, but in a perfect world, I could pay my VISA bill.. lol. This go around is going to have to be soley on me watching him, as it is "priceless" information~! Otherwise, he was his happy self today - wandering a lot and probably in need of some serious structure, which he did not want me to provide, lol!
I took away Ty's favorite stims (am I crazy, lol) and started working with him on identifying high frequency sight words. Whoa, he is terrible working for me.. pitched a huge fit. But to my surprise I got vocal approximations for "A", "I", and "ME" - "me" is new, we knew he could echoic A and I. He also said "no" several times when he was mad - gotta love motivation and language! New thing with the train today is he doesn't want the track set up.. (that was short lived) - so everytime he walks by it, he takes the track apart. I went ahead and put it away and brought out a car toy instead and he is approaching it - slow, slow progress with toy play.
On the biomed front... we are begining to add back some key Yasko supps as I had mentioned earlier in the week. I carefully went through Ty's genetics this morning and will be looking at areas that I feel the tea will not benefit (or areas that looked "stressed" since we took him off of everything). I am going to work up slowly to add back about 20 supplements. I am not going to concentrate on organ support or gut, as I feel the tea is doing a terrific job in these areas. Instead, I am focused on neurotransmitter aspects, and will eventually work toward methylation pathway supports. Hopefully we can find a nice balance and get some testing done to see where things are. In a perfect world I would have sent off a UAA and MAP when he started to tank, but in a perfect world, I could pay my VISA bill.. lol. This go around is going to have to be soley on me watching him, as it is "priceless" information~! Otherwise, he was his happy self today - wandering a lot and probably in need of some serious structure, which he did not want me to provide, lol!
Tuesday, January 27, 2009
DAY 67
SCHOOL'S CLOSED - Bummer, predicting an ice storm..... gonna be a long day - verbal stimming is more like a shriek this morning, ouch! I may have to search out some of hubby's airport earplugs! Day was a farce, no ice and now they are saying should hit tonight - let us hope that there is only a delayed opening tomorrow and not another cancellation. It was a very stimmy and boring day. However, skid marks in underwear - so at some point there was an independent BM I missed (yay), approached train set more, and tonight I caught him in the bathroom looking at himself brushing his hair! Very cute and a first!
Monday, January 26, 2009
DAY 66
Ty awoke happy... hard time getting him to sit at the table and eat breakfast because he was playing with the train again!!!! This is incredible and I have to say there is an underlying pride that overcame me watching him appropriately play, rather than walking around with a handful of straws. There is no doubt in my mind that this is a direct result of the Tomatis boost we just did... these are the small hurdles of transitional gains we see when we do one.
Ty was in good spirits after school, though the teacher noted tons of high pitched verbal stimming - he did approach the train set several more times today and ate great. Seemed a tad hyper, but was in a funny way, not so stimmy - just having fun and interactive. AND he pooped in the potty!
Ty was in good spirits after school, though the teacher noted tons of high pitched verbal stimming - he did approach the train set several more times today and ate great. Seemed a tad hyper, but was in a funny way, not so stimmy - just having fun and interactive. AND he pooped in the potty!
Sunday, January 25, 2009
DAY 65
We attended a new church today and I put Ty in the 2 yr old daycare room (older age rooms were instructional based, not play based, so it seemed like the best option for disruption!). He did great for the hour they said, no problems. We went to breakfast afterwards and he hung all through the meal with NO dvd player - good progress as we always offer at restaurants!
He said "potty" today on echoic (new word), but crapped in his pants later in the afternoon, lol. Win some, lose some! He had several gluten infractions (one being the goldfish they served in the daycare room!) and the other a seek mission in our pantry for crackers that we missed~! No behavioral issues or excess stimming resulted, but he is not an instant reactor in general. Actually, he has been fairly calm this afternoon. I made potato/zucchini pancakes, new food, and while slightly offended by the texture at first, ended up eating them without fuss. We have actually introduced many new foods lately - homemade chicken patties, meatballs, hotdogs, new bread, and all have gone over magnificently. It is GREAT to see his diet expanded and not so rigid on processed GFCF foods! Should help the food bill a bit too, lol!
He also approached the train set from yesterday several times today again... fleeting, but hey! Will be an early night tonight - he seems tired.. up at 6am this morning and a full day. GABA may be contributing also.. we have sprinkle dosed 3 x today, about a 1/2 cap total.
He said "potty" today on echoic (new word), but crapped in his pants later in the afternoon, lol. Win some, lose some! He had several gluten infractions (one being the goldfish they served in the daycare room!) and the other a seek mission in our pantry for crackers that we missed~! No behavioral issues or excess stimming resulted, but he is not an instant reactor in general. Actually, he has been fairly calm this afternoon. I made potato/zucchini pancakes, new food, and while slightly offended by the texture at first, ended up eating them without fuss. We have actually introduced many new foods lately - homemade chicken patties, meatballs, hotdogs, new bread, and all have gone over magnificently. It is GREAT to see his diet expanded and not so rigid on processed GFCF foods! Should help the food bill a bit too, lol!
He also approached the train set from yesterday several times today again... fleeting, but hey! Will be an early night tonight - he seems tired.. up at 6am this morning and a full day. GABA may be contributing also.. we have sprinkle dosed 3 x today, about a 1/2 cap total.
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