Sunday, April 19, 2009

Got back Ty's OAT test and yeast numbers are horrible. With the high yeast, I think we can attribute the regressions we are seeing to it. Ty is not using his Go Talk device anymore independently, and shredding is back. Shredding could have been tied to the tea, so we'll have to wait that out and see what transpires as we tackle this current bout of yeast, but overall I see a very scattered and unfocused little boy. On a good note however (ever the optimist) the rest of his OAT looked pretty good, so if we can get this yeast under control, we may see some progress stick!
I bought the Body Ecology book and am researching that diet as a possible Summer intervention..... yes, more research....

Monday, April 13, 2009

DAY 144

Got the results back from his UTM and it was practically no excretion. I can discern one of two things, the tea has reduced his toxicity (which was well onto its way of low anyway), or pulling his methylation supps. back in November has him not excreting and the toxicity is bound. I am leaning toward the second explanation, and have added back the methyl. supps. He seems to be tolerating them the last 2 days, but too early to really tell if they are going to give us a problem.
We have begun treatment with Namenda, only at 2.5 mg. right now. Again, too soon to tell, day 4. And we have decided to move forward and see Dr Rossignol. We will be taking Ty to Melbourne, FL at the end of the month for our first consult. With that appt. approaching, I am looking for a baseline as I know he will be ordering many tests for Ty, and therefore have pulled his chinese tea as of today. I am going to try it for 2 wks. until the appt. and see if we see any reduction in the vocal stimming. While the high pitched yelp has decreased dramatically since the removal of the Enhansa, it is still a problem, now manifested in a monotone chant - lol. Of course, we'll be watching stools as well, as this was the main area of improvement with the tea!

Friday, April 3, 2009

DAY 134

Well it has been a bit of time since our last update and we have made some changes. The shredding stim was back full force, and I could only attribute to the new introduction of the Enhansa last month with dosing increases. Sure enough, when we pulled it, things calmed down tremendously. High pitched vocal yelp is actually way down also. Ty is once again looking pretty good. Some nice attempts at toy play, now that he isn't hell bent to constantly seeking out something to shred, and away went the portable DVD player in exchange for real TV programming. WOW! Enhansa did a number on him. He was on Diflucan and then Ketoconozole throughout most of it, so while many see yeast kicks up on intro of it, I don't think that was our issue for Ty. It was either the fact that it is high phenolic (cucurmin) or that the raise in glutathione levels was too much for him and resulted in detox. We did take a UTM about 10 days ago, but haven't seen any results from it yet. Will post when we do.
Other than that.. he looks good. He has begun to use his communication device at school and home and we are seeing some nice spontaneous requesting with it - as well as some decent echoics also. School reported 2 new words this week, and they never hear anything, lol!
Will keep yah posted!